AlzAuthors: Untangling Alzheimer's & Dementia

By: AlzAuthors Featured on The Whole Care Network
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  • Summary

  • Welcome to the AlzAuthors podcast! We’re so glad you found us. We're the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.

    Featuring Marianne Sciucco, RN

    Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.

    Learn more about Marianne at AlzAuthors.com.

    Purchase "Blue Hydrangeas"

    Featuring Christy Byrne Yates, M.S., LEP

    Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.

    Learn more about Christy at AlzAuthors.com.

    AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.
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Episodes
  • Butterflies and Breast Cancer Amid Dementia Caregiving with Allene Symons

    Butterflies and Breast Cancer Amid Dementia Caregiving with Allene Symons
    Oct 1 2024
    Marianne and Christy engage in a heartfelt conversation with Allene Symons, devoted caregiver to her late husband Allen, who battled Lewy Body dementia. She’s the author of Love in a Time of Caterpillars: A Memoir of Monarchs and Caregiving. Her unique perspective on utilizing butterfly gardening as a source of therapy and joy, along with her insights on managing personal health crises during caregiving, make her a compelling and relatable guest. Allene shares how their hobby of tending to a butterfly garden became a source of therapy and hope, offering moments of respite and joy amidst the challenges of dementia. The simple act of observing caterpillars transforming into butterflies not only brought light to her husband's eyes but also became a cherished activity that bonded their caregivers with the natural world, providing a sense of purpose and connection. Allene's story beautifully illustrates the profound impact of outdoor activities and nature therapy in dementia care, showcasing the power of finding beauty and comfort in the midst of adversity. Her experiences highlight the importance of nature therapy, and the challenges faced by caregivers, especially amidst the disruptions caused by the COVID-19 pandemic. She also shares the difficulties she endured when she was diagnosed and treated for breast cancer during the pandemic. Quote "The extreme flexibility we need when we're caregivers who are a loved one with dementia is core to the journey." In this episode you will: Discover the unexpected connection between butterfly gardening and dementia care.Find out how one caregiver found joy and solace in nature therapy.Learn effective strategies for managing technology with dementia patients.Understand the unique impact of COVID-19 on dementia care and how to navigate it.Explore the compassionate use of loving lies in dementia caregiving.Embrace the importance of outdoor activities in improving the emotional well-being of dementia patients. After the podcast Read Allene’s AlzAuthors post: we'll get this once it's published.Connect with Allene Website LinkedIn X-Twitter Facebook Instagram Purchase Love in a Time of Caterpillars now. Note: We are an Amazon Associate and may receive a small commission from book sales. Mentions Alzheimer’s Association Companion cards PDF (download and print) About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    50 mins
  • Christy Byrne Yates on Raising Kids While Caring for Parents with Dementia

    Christy Byrne Yates on Raising Kids While Caring for Parents with Dementia
    Sep 17 2024
    One parent with dementia is challenging enough, but when you have TWO parents with dementia while raising young children it’s easy to fall into despair and chaos. When Christy Byrne Yates, a licensed educational psychologist, writer, and speaker, found herself in this situation she learned the necessary skills she needed to not only provide care to her parents and children but also to herself. In this replay of the AlzAuthors Aging & Amazing Books & Chit Chat discussion, she shares her insights, offering practical tips on navigating family dynamics, building a legacy of love in caregiving, and providing emotional resilience and support Christy's openness about her emotional struggles and the lessons learned from her parents offers a profound exploration of the caregiving experience, reminding listeners of the enduring power of love, empathy, and self-discovery within the caregiving journey. Her unique perspective and heartfelt reflections make this episode a must-listen for anyone seeking valuable insights and guidance in managing the complexities of caregiving for aging parents, especially those dealing with dementia. Author of Building a Legacy of Love: Thriving in the Sandwich Generation, she’s a member of the AlzAuthors management team, and co-host and producer of the "Untangling Alzheimer's & Dementia" podcast. In this episode, you will: Discover the power of self-care while caring for parents with dementia.Uncover the secrets to building a lasting legacy of love in your caregiving journey.Navigate and defuse challenging family dynamics while caring for loved ones.Unlock the top tips for managing the unique challenges of being a sandwich generation caregiver. About Christy Byrne Yates, MS In addition to being an author, Christy is a Licensed Educational Psychologist (LEP), a credentialed school psychologist, a speaker, and life coach. As the mother of two – now grown – children, she became an expert in navigating life’s challenges and opportunities, including living in the “Sandwich Generation,” those raising children while caring for aging parents. After the podcast Read Christy’s AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Purchase Building a Legacy of Love: Thriving in the Sandwich Generation. Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Christy Byrne Yates Website and blog Twitter Facebook Instagram LinkedIn YouTube About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    50 mins
  • A Pot of Sauce, A Pinch of Love: Cooking Through the Challenges of Dementia with Jeanette Fazzari Jones

    A Pot of Sauce, A Pinch of Love: Cooking Through the Challenges of Dementia with Jeanette Fazzari Jones
    Sep 3 2024
    In this heartfelt episode of AlzAuthors, we dive into the emotional and practical aspects of caring for loved ones with dementia, with a special focus on family memories and intergenerational bonds. Jeannette Fazzari Jones shares a particularly touching story about her experiences with her grandparents’ dementia, detailing both the struggles and joys she encountered along the way. She is the author of the beautifully illustrated children's book, Meatballs for Grandpa. We talk about how the many senses like touch and smell impact memory, and how to use sensory activities to connect not just with our person with dementia, but with children who may yearn to stay connected to a beloved person. As an educator, Jeanette speaks to the kinds of activities that can be used with young children who may read or listen to the story. We discuss the traditions of cooking and treasured recipes that are handed down through families that keep family connected. Jeanette is the author of the beautifully illustrated children's book, Meatballs for Grandpa. After listening to this warm and delicious episode, you might just be inspired to cook a big batch of meatballs! Connect with Jeannette Buy Meatballs for Grandpa Read her AlzAuthors blog post - need to add link Website Instagram Facebook Twitter/X About the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here’s what you need to know We’ve got merch! Shop our Store
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    47 mins

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