Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate who is making his first appearance on the Chronic Pain Talk Show.

In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in research, the power of advocacy, and the impact of shared decision-making.

Key topics covered in this episode:

Simon's personal experience with juvenile arthritis The role of patient advocacy in healthcare The importance of shared decision-making between patients and healthcare providers The future of patient involvement in research

Don't miss this inspiring conversation with Dr Simon Stones.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

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Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis

Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!

DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.

In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy sports despite the challenges of the disease.

Little did we know that this conversation would lead to Craig joining Joel in founding Psoriatic Disease UK, a new patient-led charity in England and Wales that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and associated comorbidities. Proving that conversations really do change lives. Find out more here: https://psor.org.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us.

Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes.

We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it.

These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s).

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Twitter/X: https://x.com/MartjStevens

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.

Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.

In part two, we dive into why Heather plays games like Minecraft to distract themself and cope with the realities of living with multiple chronic illnesses and how they put their unique twist on it by linking it to their love of history.

Listen to hear a novel and alternative way to manage your pain.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplays Twitch: https://www.twitch.tv/archaeoplays Instagram: https://www.instagram.com/archaeoplays/

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX. All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.

Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.

In two episodes recorded in front of a live audience on the Chronic Pain Club Talk Show, Heather first shares with us their story of chronic illness before, in part two, we dive into why they play games like Minecraft to distract and cope with the realities of living with these, and how they put their unique twist on it by linking it to their love of history.

Check out this episode for our usual lived experience story, but come back for Part 2 to hear a novel and alternative way to manage your pain.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplays Twitch: https://www.twitch.tv/archaeoplays Instagram: https://www.instagram.com/archaeoplays/

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

For the 50th episode of the Joel Nelson Podcast, we are joined by the fabulous Ali DiGiacomo!

Diagnosed with Juvenile Idiopathic Arthritis at 15 and then hit with severe Rheumatoid Arthritis at 22, Ali went from competitive swimming to giving up fitness entirely. But a decade later, she decided to fight back, one workout at a time.

Whether you're struggling with chronic pain, looking for a fresh perspective on fitness, or simply in need of a dose of inspiration, Ali's RA story is a must-listen.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Instagram: https://instagram.com/AnotherDayWithRA TikTok: https://tiktok.com/@AnotherDayWithRA

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

In this episode, we are joined by Chloë Hammond, a trailblazing clinical nurse who is breaking down barriers in the healthcare industry, and her amazing assistance dog, Ocho.

Despite being a wheelchair user and an assistance dog owner after being diagnosed with a rare disease at the age of 15, Chloë thrives in her role as one of the few disabled nurses in the UK.

In this episode, we'll explore Chloë's unique journey as a nurse with a disability, the importance of assistance dogs, how Ocho enhances Chloë's life, and the shockingly low representation of disabled individuals in the healthcare workforce and what needs to change.

This engaging conversation will challenge your perspective, ignite inspiration, and leave you with valuable insights on disability inclusion and achieving dreams despite adversity.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Instagram: https://instagram.com/wheelie.nurse.with.a.dog & https://instagram.com/watchochogrow

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference!

In this episode, you will hear from:

• Raquel Vaz, Scientific Project Leader at IFPA
• Paul Studenic, Researcher and Rheumatologist at Medical University of Vienna
• Rebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project)
• Souzi Makri, Past Chair of EULAR PARE and Vice President of the Cyprus League for People with Rheumatism
• Katy Antonopoulou, PARE Committee Member and President of Sjogren’s Europe

You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.

For more information about the Good Care for PsA project: See here.

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis

Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis

DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray