Recorded just before the EULAR Congress 2024 in Vienna, we are joined by Dr Simon Stones, a multiple award-winning patient advocate who is making his first appearance on the Chronic Pain Talk Show.

In this insightful conversation, Simon shares his personal journey living with juvenile arthritis and his passion for improving patient experiences. We delve into the importance of patient involvement in research, the power of advocacy, and the impact of shared decision-making.

Key topics covered in this episode:

Simon's personal experience with juvenile arthritis The role of patient advocacy in healthcare The importance of shared decision-making between patients and healthcare providers The future of patient involvement in research

Don't miss this inspiring conversation with Dr Simon Stones.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

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Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!

DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.

Music Credit: Buffon – by Gideon Murray

Psoriatic disease can cause pain and stiffness in the joints, making it challenging to stay active. However, exercise is crucial for managing the condition.

In this episode, we're joined by Craig Young, a sports fan living with psoriatic disease. Along with his diagnosis journey, Craig will share his tips and tricks for staying active and how he has adapted to his diagnosis to continue to enjoy sports despite the challenges of the disease.

Little did we know that this conversation would lead to Craig joining Joel in founding Psoriatic Disease UK, a new patient-led charity in England and Wales that supports equally those affected by psoriatic disease, including psoriasis, psoriatic arthritis, and associated comorbidities. Proving that conversations really do change lives. Find out more here: https://psor.org.

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray

On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us.

Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes.

We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it.

These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s).

If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3

Follow our GUEST: Twitter/X: https://x.com/MartjStevens

Follow the HOST: Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis Watch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation! DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals. Music Credit: Buffon – by Gideon Murray