Disability Activists

Paralyzed from polio at 18 months, Judy Heumann began her struggle for equality early in life. From fighting to attend grade school after being described as a 'fire hazard' to later winning a lawsuit against the New York City school system for denying her a teacher's license, to leading the section 504 sit-in that led to the creation of the Americans with Disabilities Act, Judy's actions set a precedent that fundamentally improved rights for disabled people around the globe.

This honest, outspoken, and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.

Robert Hoge was born with a giant tumour on his forehead, severely distorted facial features and legs that were twisted and useless. His mother refused to look at her son, let alone bring him home. But home he went, to a life that, against the odds, was filled with joy, optimism and boyhood naughtiness. Home for the Hoges was a bayside suburb of Brisbane. Robert's parents, Mary and Vince, knew that his life would be difficult, but they were determined to give him a typical Australian childhood.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Tommy Jessop is a multi-award winning actor, theatre performer, and campaigner. Tommy has been at the vanguard of bringing awareness of the potential of people living with Down syndrome to the media, and to government. A Life Worth Living will be Tommy's story - from his journey into acting and campaigning while showing his unstoppable determination, charisma, and love for life.

Eddie Ndopu was born in 1990 with Spinal Muscular Atrophy (SMA), a rare degenerative motor-neuron disease, and told that he wouldn't live beyond age five. Now, thirty-one years old and stronger than ever, he continues to celebrate each turn around the sun as an existential defiance of the odds. Gay, Black and a wheelchair user, he is now an eminent thought-leader and holds positions at two of the most important organizations on the planet. Sipping Dom Pérignon Through a Straw is Eddie's odds-obliterating story that illustrates what true leadership can look like.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

When Helen Keller was very young, she got a rare disease that made her deaf and blind. Suddenly, she couldn't see or hear at all, and it was hard for her to communicate with anyone. But when she was six years old, she met someone who changed her life forever: her teacher, Annie Sullivan. With Miss Sullivan's help, Helen learned how to speak sign language and read Braille. Armed with the ability to express herself, Helen grew up to be come a social activist, leading the fight for people with disabilities and so many other causes.

Quentin Kenihan is living proof that superheroes don't need capes, just the right attitude. When he was a kid, Quentin loved Superman. Ironic, really. Quentin didn't need kryptonite to reveal his weakness - born with a rare bone disorder, osteogenesis imperfecta, his bones broke all on their own. When Quentin was seven, Mike Willesee made a documentary about him. Australians fell in love with his wit and never-say-die attitude. Over the years he grew up before our eyes. But there was a dark side to his life. The true story was never told...until now.

As a boy, severely disabled after contracting polio as a baby in working class Liverpool, Bert Massie found himself wondering why disabled people were expected to adapt to the world around them, and not the other way round. In his teens, he began to campaign for rights for disabled people, and having battled his way through prejudice and the education system to become a Bachelor of Arts and a qualified social worker, he became a prominent figure in the fight for fair treatment for disabled people leading to the ground breaking Disability Discrimination Act.

From a very young age, Judy Heumann heard the word NO. When she wanted to attend public school, the principal said NO. When she wanted her teaching license, the New York Board of Education said NO. Judy and people with disabilities everywhere were tired of hearing “NO”. In the 1970s, an important disability rights law, Section 504 of The Rehabilitation Act of 1973, was waiting to be signed. Judy and other disability rights activists held a sit-in until Section 504 was signed into law, laying the foundation for the Americans with Disabilities Act.

From a very young age, Judy Heumann heard the word NO. When she wanted to attend public school, the principal said NO. When she wanted her teaching license, the New York Board of Education said NO. Judy and people with disabilities everywhere were tired of hearing “NO.”

Helen Adams Keller was an American author, handicap rights champ, political activist, and speaker who lived from June 27, 1880 to June 1, 1968. She was born in West Tuscumbia, Alabama, and following a bout of health problem at the age of 19 months, she lost both her sight and hearing. Keller used home signals till she was seven years of age, when she met Anne Sullivan, her first instructor and long-lasting partner, who taught her language, and that includes reading and writing.

In this powerful new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller’s journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability. Peeling back the curtain that obscured Keller’s political crusades in favor of her “inspirational” childhood, After the Miracle chronicles the complete legacy of one of the 20th century’s most extraordinary figures.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.

In this heartfelt, thought-provoking and often hilarious book, Lottie Jackson reflects on her experiences of living with disability: from the pitfalls of going shopping on a mobility scooter, and the headache of defining oneself on a tick-box form, to a slapstick scuffle with the so-called 'easy-pull' tights aid, and the intense pleasure of finally swapping a hospital gown for a slinky dress. Lottie captivatingly expresses the raw vulnerabilities, injustices and untold joys of disability, as well as the bizarre everyday occurrences that able-bodied people usually don't experience.