Showing results for "Wellness" in People with Disabilities

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

In this honest and open account of life with her PDA daughter, Sasha, Steph Curtis reveals the everyday struggles and explores the milestones of raising a child diagnosed with Pathological Demand Avoidance. This book guides you through the Curtis family's 'lightbulb moment' of recognising Sasha's PDA profile following her autism diagnosis at the age of two, their experiences of various education settings and attempts to access support, everyday life at home and relationships with family and friends.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

What do you do when you wake up in your mid-40s and realize you've been living a lie your whole life? Do you tell? Or do you keep it to yourself? Laura James found out that she was autistic as an adult, after she had forged a career for herself, married twice and raised four children. Odd Girl Out tracks the year of Laura's life after she receives a definitive diagnosis from her doctor, as she learns that 'different' doesn't need to mean 'less' and how there is a place for all of us, and it's never too late to find it.

Through the intimate writing of critically acclaimed autistic author Kay Kerr, Love & Autism presents an uplifting celebration of neurodivergent love, the search for it and a deeper look into the lives of autistic Australians.

Living in the Belgian Congo with her husband in the 1960s, Fran’s mother became pregnant with a daughter. However, right after she gave birth in the hospital, she felt strange. Unbeknownst to anyone, another daughter was on the way, but before anybody responded, an hour had passed. Because of the delay, Fran was born with cerebral palsy. Growing up with her siblings in Africa, Fran always felt different. When everyone else was playing and having fun, she would watch and wish she could join in.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

The moving true story of a little girl with Asperger syndrome, controlled and abused by the one person she called her friend. Taylor had always struggled to make friends - she felt 'different'. Taylor never knew her father, and her mother wasn't around much. She just didn't understand people and was alone and scared most of the time. That was until, aged just 11, an older married man called Tom befriended her. She loved having someone who would talk to her, listen to her - a protector. But when he moved away a few months later, she was easy prey.

My Autistic Fight Song is a memoir that follows Rosie Weldon’s journey from a college drop out as she tries to achieve her dream of being a qualified accountant. With the odds stacked against her and the stakes high, she refuses to give up on her dream. Of two things Rosie was sure. First, she wanted to be an accountant. Second, she was destined to be alone. But when life threw at her an autism diagnosis and a mystery girl, she was left asking: Who would employ her and was she capable of falling in love?

As a 14-year-old psych ward patient, Harry realized he had a choice: let anorexia keep ruining his life or fight back against everything his mind told him was true. Now 22 years old, Harry delicately pieces together how his mind derailed to that point, what’s happened since he made his choice, and most importantly, what it’s taught him about life and how best to live it.

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer's. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer's at the age of 67. Her dream to grow closer to him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father's fate.

Andrew, 8, is autistic and bilingual. He speaks English and Chicken. With words limited by autism, Andrew lives in a fantastic world where chickens talk and superheroes come alive. But when he tells his pet chicken Frightful that his body is trying to kill him, it launches Andrew's family and an entire medical community into a decade-long quest for answers. This beautiful, fierce, and refreshingly honest memoir takes listeners on a mother's journey through the complex landscape of modern medicine to discover the healing bond between a boy and Frightful, the chicken who saves them all.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

Seahawks star running back Curt Warner and his wife, Ana, were prominent figures in Seattle in the early 1990s. When they dropped from the public eye after Curt’s retirement, everyone assumed it was for a simpler life. But the reality behind their seclusion was a secret they hid from even their closest friends: their twins, Austin and Christian, had been diagnosed with severe autism. What followed was a painful struggle to hold their family and their marriage together in a home filled with chaos, emotional exhaustion, and constant fear for the safety of their unpredictable but beloved boys.

My neurologist stunned me when she said, “You have multiple sclerosis, and looking at your MRI, you are a walking time bomb. You may not have symptoms today, but it’s just a matter of time.” As the MS tightened its grip on my body, I plunged deep into a myriad of strange feelings—denial and depression for over a year.

Barbara Anderson narrates with brutal honesty the day-to-day experience of having a child with disabilities: the challenges inside and outside the home, health and life complications, the shifting priorities, the daily Mt. Everest-sized struggle of having a child with an—until now—irreversible diagnosis such as infantile cerebral palsy.