Our podcast guest today is Maxine Linnell. Maxine first tells us about her fascinating career, including working as psychotherapist for 30 years, alongside many other interesting teaching and facilitating positions. She trained in humanistic and Buddhist psychotherapy, and specialised in working with trauma. In her 60s she fulfilled her childhood dream: her first book was published.

Maxine talks about her close friend Kate, who died with Alzheimer’s during lockdown. When she recognised some changes in her own mind, she was determined to get a diagnosis quickly. She describes what happened to prompt this decision. Luckily, she got an appointment with a consultant neurologist. That was incredibly helpful: he was very respectful, he was honest, but he didn’t write her off. This consultant’s attitude was all about helping people to maintain their lives and carry on as normally as possible.

She talks about how scary it was after that initial diagnosis. She describes how she spent time preparing for what might come, and how she began to withdraw and lose her confidence about what she could do.

But then she explains how she made her big decision that she wasn’t going to withdraw from life. She describes how she continues to write, and how she has become a dementia advocate and activist. She shares how dementia has led her to be more outspoken, less diplomatic and to use writing to help dispel the myths people believe around dementia.

Maxine also shares her thoughts on the word Dementia and Alzheimer’s – and how she doesn’t like the way many people treat those with dementia. She finds it very helpful to be part of the dementia community where she meets other people who have dementia. But she thinks that everybody in society should treat each other with respect and care.

She describes how she has organised her world to live with dementia: she uses Alexa to help her remember what she has planned for each day, she has learned to recognise how some of her senses have changed, and sometimes she’s able to keep calm when something might scare her. But most importantly, she says understanding what’s happening enables her to make choices.

Hearing Maxine talk about her life with dementia is both moving and inspiring, and leads you to her vision: rather than think that everything someone living with dementia feels is a symptom of dementia, it’s important to listen deeply, to empathise and respond.

If you want to understand more about how Maxine lives with a diagnosis of dementia, we would encourage you to read her blog and poems on her website https://www.maxinelinnell.com/

You could also read Knowledge is Power, published by Innovations in Dementia. This booklet was written by people living with dementia, including Maxine. It is for people living with dementia, to support you in living as well as you can.

Dr Carol Sargent: https://sargentgroup.consulting/

Dr Tom Adler: https://getbide.com/

Our guest today is Michael Verde, from Texas, who from a very early age made the decision that he didn’t want to end up in a small universe and decided reading 100 pages a day would broaden his horizons.

Michael is now a writer, and founded Memory Bridge in 2003 after hearing someone on a documentary talk about people with dementia in a disparaging way and meeting someone from the Smithsonian Centre for Folk Life and Cultural Heritage.

Memory Bridge exists to end the emotional isolation of people with dementia. They bridge people with and without dementia to each other in life-changing ways, with educational programs hosted on three continents.

His passion is all about communicating with people, and he explains how people often feel disconnected from others, because they are not being emotionally cared for, creating emotionally isolation.

The training is designed to improve participants’ ability to attune to the emotions of a person with dementia and to establish a relationship of profound trust and mutual understanding, a foundation to all forms of person-centred care.

Michael describes how a Memory Bridge educational programmes use learnings from people with dementia to enable us to be present with each other in emotionally profound ways.

Memory Bridge participants are educated and encouraged to find a new way of being with people with dementia—a way that can turn awkward to flow, isolation to intimacy, and loneliness to companionship.

What is important is to give someone the kind of attention that enables people to feel that they belong and matter. He believes that communication is not a means to an end. It is the end.

‘Nobody is anybody without someone paying loving attention to him or her. ‘

You can find Michael’s website here: https://www.memorybridge.org/

You can contact us at the following:
Dr Carol Sargent: https://sargentgroup.consulting/
Dr Tom Adler: https://getbide.com/

Today’s guest is Steve Brine, @BrineHealth, former Health Minister and Chair of the Health Select Committee, and co-host of the podcast, Prevention is the New Cure, @PreventionPodc.

Steve tells us about his journey into politics. His interest in the environment was sparked as a youngster, and he thought that politics might be the place to go if he wanted to change the world. On his arrival at the House of Commons when asked what he wanted to do, he said he was interested in health. When Theresa May became Prime Minister, he became Public Health Minister.

We talk about how the world of politics and health worked, and some of the initiatives that Steve put into place during his time in the role. Interestingly, Steve explains how influence in politics works and differs depending on your job, and when chairing the Health Select Committee you are able to have significant influence on the agenda. He understands the value of primary care, and was instrumental in the development of Pharmacy First. He has also strongly campaigned for earlier cancer diagnosis.

We have a conversation about the disparity in NHS funding between primary and secondary care. He certainly doesn’t believe it should be the way it is, and shares his thoughts on the conundrum that faces the government, and the difficult political conversations that are needed.

Steve also talks about how important integrated care is for us to be able to be as inclusive as possible.

If you’d like to contact Steve:
LinkedIn: https://www.linkedin.com/in/steve-brine-00979b1a1/
X: https://x.com/BrineHealth
Website: https://www.stevebrine.com/

You can contact us at the following:
Dr Carol Sargent: https://sargentgroup.consulting/
Dr Tom Adler: https://getbide.com/