• This Is Who These Rare Kiddos Are

  • Jul 25 2024
  • Length: 34 mins
  • Podcast

This Is Who These Rare Kiddos Are

Listen for free

View show details

  • Summary

  • Beyond the Diagnosis is more than a traveling art exhibit. It is a movement to humanize the children who happen to have a rare disease. So much of the work around rare diseases is logical, scientific, and medical. It can be a world without feeling.

    Using art and artists to introduce and celebrate these children is much more personal and evocative. Raghav’s mom Ramya describes it as “creating joy and a feeling of permanence in the fleeting lives we have.” The artists who paint these pictures find a new purpose, a sense of amazement, and a deep understanding of these children.

    Listen to rare mom Patricia Weltin describe the origins and the unexpected organic growth of this movement.

    Mentioned in this episode:

    Invitation to Check Out The Atlas

    The Atlas
    Show More Show Less
Show More Show Less

What listeners say about This Is Who These Rare Kiddos Are

Average Customer Ratings

Reviews - Please select the tabs below to change the source of reviews.

Audible.com.au reviews

Amazon Reviews
No Reviews are Available
In the spirit of reconciliation, Audible acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.