• Rare Disease Day 2023: You Can Get Involved to Raise Awareness for Rare Diseases

  • Feb 24 2023
  • Length: 24 mins
  • Podcast

Rare Disease Day 2023: You Can Get Involved to Raise Awareness for Rare Diseases

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  • Summary

  • In 2023, NORD (National Organization for Rare Disorders) will be celebrating its 40th Anniversary and the 40th Anniversary of the Orphan Drug Act. On February 28th, NORD will lead the charge on Rare Disease Day. A day in which anyone can get involved to raise awareness for rare diseases.

    In this episode, we talk with Jill Pollander, the Vice President of Patient Services at NORD. Jill talks about the history of NORD and the Orphan Drug Act and how NORD supports the rare disease community. Jill gives us insight into rare disease patient organizations and how they can support rare disease patients. Jill also speaks to ways you can get involved and raise awareness for rare diseases and what resources are available. And most importantly, how you can participate in Rare Disease Day on February 28th and join the millions of rare disease patients who are raising their voices and elevating awareness for rare disease support.

    LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers dealing with LEMS. Wherever you are, searching for the right doctor, diagnosis, or treatment, this site can guide you to that next milestone.
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