Meet Hodges R. Caldwell Jr. - one of the most dynamic, inspiring individuals you'll ever get to know. Hodges was born in 1979 in Virginia and in his words, "looked pretty normal as a baby". At six-months old, Hodges developed a blister on his right side. Even though doctors told Hodges' mom that it would go away, it never did. It actually got bigger until it finally burst giving the appearance that he had been burned.

It was finally at a hospital in Bethesda, Maryland that Hodges was diagnosed with EB. Unfortunately, that is all doctors there were able to do - just a diagnosis. They admitted they had no idea how to treat it. The doctors told Hodges' mom they only expected him to live to the age of two. However, mom refused to accept that!

Today, Hodges is the President and CEO of EBLifeStyle Inc - an organization that focuses on the mobility aspect for the EB community. Walking is extremely painful for anyone suffering from Epidermolysis Bullosa. This is why EBLifeStyle Inc donates lightweight, portable mobility aids to the E.B. Community.

Quote from Hodges: "EB to me is - Perfection of imperfection. We adapt and persevere, not by choice, but out of necessity. We are the chosen ones."

Learn more about the voices in this episode:

Hodges Coldwell Jr. - Personal Journey

EB LifeStyle Inc - Learn how you can help the EB Community

Heroes for Hallie Grace, Inc.

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