PANS/PANDAS STORIES

By: Jo Joyner and Lucy McDonald
  • Summary

  • Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.
    Jo Joyner and Lucy McDonald
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Episodes
  • Education expert Tina Coope from PANS/PANDAS UK
    Nov 14 2024

    Jo Joyner speaks to Education Expert Tina Coope from the UK charity about helping children at school. She has good tips about how to speak to schools and help teachers understand how to help these children.

    If you have any ideas about other educational aspects you would like covered please let us know in the comments. Also please review if you can - it helps others find our podcasts more easily.

    For more info PANS PANDAS UK also have a range of educational resources available, including free online CPD-accredited teacher training (donations are optional but appreciated). Check them out here: https://panspandasuk.org/support-resources/for-educational-professionals/ A wealth of information for allied professionals, families, adults, young people and children is also available here- https://panspandasuk.org

    A PANS, PANDAS Education, Social Care and Health Group (ESCHG) is also working on putting together a position statement and some helpful guidance for Local Authorities. You can find more information here: https://panspandasuk.org/post/efforts-underway-to-support-families-and-professionals-across-education-social-care-and-health-to-develop-a-position-statement-on-pans-and-pandas/

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    30 mins
  • Psychologist Naomi Fisher talks about school and low demand parenting
    Oct 3 2024

    Brilliant chat with Naomi Fisher about low demand-parenting, how parents unwittingly create pressure for their children, how to choose the right school, how to collaborate when things go wrong, and why saying less can be the hardest lesson for parents!

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    56 mins
  • Nutritionist Lucinda Miller on brain health, histamine, and the healing power of good food
    Sep 20 2024

    Lucinda Miller is back to talk about her new book Brain Brilliance. It looks at how what you eat affects your health and mood.

    The book is described as a nutritional toolkit for neurodivergent kids, and is full of healthy and delicious recipes, as well as chapters on what to eat for certain symptoms. It is heavily academically-referenced (550, I think!), and she recommends nutrients and foods that support the immune system.

    She talks about every day supplements most children can tolerate, growing incidences of high-histamine and what this means, the three different stages of immunity and how to move children back into a place of safety and out of auto-immune issues through diet and supplementation.

    Some links about things we spoke about...

    Here is me from my time as a food blogger - at Crumbs Food - making Cake in a Cup. Here is the study on auto immunity, and the Adverse Childhood Experience Study


    Next month is devoted to PANS PANDAS and education. We kick off a mini series with Naomi Fisher and her latest book When The Naughty Step Makes Things Worse. Then we have PANS PANDAS UK's very own Tina Coope who has loads of good tips, and whose work on the charity's education and care steering group will make a real difference to many of our community's lives.

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    39 mins

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