• Noa's story: Canavan disease

  • Feb 10 2025
  • Length: 24 mins
  • Podcast

Noa's story: Canavan disease

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  • Summary

  • Four-year-old Noa Greenwood is an inspiration for families facing Canavan disease, a rare genetic disorder. In June 2022, she became the third child to receive a promising gene therapy for the disease, developed by researchers at UMass Chan Medical School. This episode explores Noa’s story, her parents' commitment to rare disease awareness and the hope innovative treatments provides. 🎧 Listen and subscribe to all episodes of Rare Diseases, Real Stories: umassmed.edu/rarediseasesrealstories 💜 Learn more about Canavan disease: National Tay-Sachs & Allied Diseases Alliance, Inc. The Horea Gene Therapy Center at UMass Chan Medical School 🔗 Share Noa’s story using the following hashtags: #RareDiseasesRealStories, #RareDiseases, #podcast Interested in learning more about gene therapy research? Email us at: AdvancingTogether@umassmed.edu
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