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MyFSHD

By: Peter L Jones PhD
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  • Summary

  • MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
    Peter L Jones, PhD
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Episodes
  • A FORTITIDE follow-up with our (not so) Angry Dad.

    A FORTITIDE follow-up with our (not so) Angry Dad.
    Jun 22 2024

    "There's a time for daring and there's a time for caution, and a wise man understands which is called for." Brad our Angry Dad is back with some questions for us on the Avidity FORTITUDE AOC 1020 phase 1/2 trial interim data report and some muscle building.

    --- Send in a voice message: https://podcasters.spotify.com/pod/show/peter-l-jones/message
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    1 hr and 16 mins
  • A(+) is still for Avidity: give me the good stuff!

    A(+) is still for Avidity: give me the good stuff!
    Jun 14 2024

    "Whatchyou talkin' 'bout Willis?" In a field where every press release is met with unsubstantiated hoopla and proclamations of BREAKTHROUGH! to fire you up to shake you down, we finally have some real news. We provide our evaluation of Avidity's public interim report on their FORTITUDE AOC-1020 phase 1/2 trial.

    --- Send in a voice message: https://podcasters.spotify.com/pod/show/peter-l-jones/message
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    1 hr and 6 mins
  • Pigs and p38

    Pigs and p38
    Jun 1 2024

    "You're messing with the wrong guy!!!!" We expand a bit more on the utility of the FSHD-like pig model and then discuss the science behind and implications of p38 inhibition for FSHD.

    --- Send in a voice message: https://podcasters.spotify.com/pod/show/peter-l-jones/message
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    1 hr and 34 mins
Management Economics
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