• Maria Mendoza's Story

  • May 5 2023
  • Length: 37 mins
  • Podcast

Maria Mendoza's Story

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  • Summary

    • Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
    • Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
    • Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
    • Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
    • Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
    • Sickle cell disease affects individuals from various ethnicities and backgrounds.
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