• Living with a Rare Muscle Wasting Disease - Inclusion Body Myositis

  • Nov 6 2023
  • Length: 57 mins
  • Podcast

Living with a Rare Muscle Wasting Disease - Inclusion Body Myositis

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  • Summary

  • Watch Jim Mathews share his personal perspective on inclusion body myositis (IBM), a rare muscle-wasting disease. He explains common misdiagnoses like ALS, details on IBM's gradual effects, information on clinical trials and latest research, how exercise temporarily improves strength, and more. Throughout the interview, Jim maintains an incredibly positive attitude despite IBM's disabling impacts on mobility and dexterity over time. He focuses on what IBM patients can still do versus mourning losses. Jim provides an honest, uplifting outlook on coping with this lesser-known disease. Get Jim's insider view into assistive devices, disability accommodations, and his admirably encouraging mindset. He gives real examples of how to adjust when facing adversity and stay positive. A must-listen for anyone seeking stories of inspiration when dealing with rare disabling conditions. #raremusclewastingdisease #inclusionbodymyositis #IBM #positivity #inspiration #disability #mobility

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