• Jack's story: Hereditary spastic paraplegia type 4

  • Feb 10 2025
  • Length: 17 mins
  • Podcast

Jack's story: Hereditary spastic paraplegia type 4

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  • Summary

  • Seven-year-old Jack Laidlaw, the oldest of three boys, is upbeat and friendly to everyone he meets, according to his parents, Anna and Richard Laidlaw. But Jack faces challenges due to a rare disorder he cannot yet comprehend. His parents are determined to remain hopeful and create a better future for him despite his diagnosis of hereditary spastic paraplegia type 4 (SPG4). 🎧 Listen and subscribe to all episodes of Rare Diseases, Real Storie: umassmed.edu/rarediseasesrealstories 💜 Learn more about the Laidlaw family and their efforts to support SPG4 research. BluGenes SPG4 research and treatment for Jack Additional information about Jack 💜 To learn more about hereditary spastic paraplegia, patient advocacy and research, visit the following resources: UMass Chan Medical School Boston Children’s Hospital, Spastic Paraplegia – Centers of Excellence Research Network Cure SPG4 Foundation Spastic Paraplegia Foundation, Inc. Mauray Koduri Foundation The Lilly Blair Foundation 🔗 Share Jack’s story using the following hashtags: #RareDiseasesRealStories, #RareDiseases, #podcast Interested in learning more about gene therapy research? Email us at: AdvancingTogether@umassmed.edu
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