• Episode 43: John Muller - Inclusion Body Myositis

  • Aug 14 2024
  • Length: 41 mins
  • Podcast

Episode 43: John Muller - Inclusion Body Myositis

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  • Summary

  • John lives with inclusion body myositis (IBM), a rare muscle-wasting disease. He shares how his symptoms, such as difficulty climbing stairs and playing guitar, were initially mistaken for aging, and later led to a misdiagnosis of ALS. He describes the emotional impact of living with a rare disease, the challenges of receiving an accurate diagnosis, and the frustration of the limited treatment options available for IBM. Despite these challenges, John remains committed to raising awareness and advocating for research to improve the lives of those affected by IBM and other rare diseases.

    The song that John selected is Into the mystic by Van Morrison.

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