In recognition of Lewy Body Dementia Awareness Month, this episode features Dr. Fleisher discussing the PERSEVERE study, which emphasizes the critical role of care partners in neurodegenerative disease research. The study tests an educational program for family caregivers of people with Parkinson's disease and dementia, dementia with Lewy bodies, and Lewy body dementia.
Dr. Fleisher shares surprising findings from home visits, unique challenges faced by underserved care partners, and the benefits of peer mentoring for caregivers. She explores potential new research directions and how the study's results can be implemented in clinical practice.
This episode highlights the importance of empowering caregivers of individuals with Parkinson's disease and Lewy body dementia, offering valuable insights for healthcare providers, researchers, and caregivers alike. Learn how you can participate in or spread the word about the PERSEVERE study and contribute to this vital research, supporting efforts to raise awareness and improve care for those affected by Parkinson’s disease or Lewy body dementia.
Guest: Jori Fleisher, MD, MSCE, FAAN
Host: Elizabeth Peterson, MA, CCC-SLP
Theme Song: Think LOUD for Parkinson’s by Kindred Spirit and Leo Sayer, a new song and video inspired by LSVT LOUD® speech treatment, developed to raise awareness for Parkinson’s worldwide. It is available for purchase on iTunes and Amazon with proceeds being split between UK charity Cure Parkinson’s and the Parkinson’s Foundation in the US.
Production Team: CS Design Studios
PERSEVERE Study Website: https://redcap.link/PERSEVERE1
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