Caregivers SHARE, a St. Jude Podcast

By: St. Jude (SJCRH)
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  • Summary

  • A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.
    2023
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Hygiene & Healthy Living Physical Illness & Disease
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Episodes
  • Living with Grief During a Time of Celebration

    Living with Grief During a Time of Celebration
    Nov 20 2024
    In this episode, Brenda Stephens and Erica Sirrine talk about loss and keeping memories alive. Brenda’s daughter Emily died of cancer at age 23. Brenda discusses navigating the first year after Emily died, the ways her family keeps Emily’s light alive, and being mentored by other parents through the journey. Brenda and Erica emphasize the importance of allowing oneself to feel, creating new traditions, and continuing to tell Emily’s story and celebrate her life. Brenda encourages other grieving parents to turn grief into love and give to others.

    A special thank you to our moderator, Erica Sirrine, social work director at St. Jude, and our parent caregiver, Brenda Stephens.

    Learn more about grief and bereavement on Together by St. Jude™.This episode was recorded on 04/26/24.
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    23 mins
  • Navigating Serious Illness with Teens and Young Adults

    Navigating Serious Illness with Teens and Young Adults
    Nov 6 2024
    In this episode, Carol Bailey and her daughter Katie talk with child life specialist Heather Haluska about going through cancer during the teen years. Katie was diagnosed with acute myeloid leukemia when she was a senior in high school. She continues to deal with chronic health conditions related to her diagnosis. Katie shares how she handled missing out on teenage experiences, used creativity as an outlet, and learned to advocate for herself in medical settings. Carol discusses learning to take time for herself. Both mother and daughter highlight the importance of communication and listening, even when they could only communicate through eye contact.

    A special thank you to our moderator, Heather Haluska, child life specialist at St. Jude; our parent caregiver, Carol Bailey; and patient, Katie Bailey.Learn more about Katie’s diagnosis of acute myeloid leukemia (AML) on Together by St. Jude™.This episode was recorded on 04/04/2024.
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    13 mins
  • Navigating Serious Illness with School-age Children

    Navigating Serious Illness with School-age Children
    Oct 23 2024
    Elnora Lee describes her 17-year journey with 3 school-age daughters navigating cancer. She talks with Randy Thompson of the St. Jude Imagine Academy about learning challenges, relationship challenges, and the importance of having compassion and empathy. She offers tips for helping a school-age child retain multiplication facts and turning trips to the store into learning experiences. Elnora emphasizes the importance of setting the tone, being firm, and focusing on the future.

    A special thank you to our moderator, Randy Thompson, STEMM coordinator, Imagine Academy by Chili’s at St. Jude, and our parent caregiver, Elnora Lee.

    Learn more about brain and spinal cord tumors on Together by St. Jude™.

    This episode was recorded on 08/05/24.
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    11 mins

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