Join us as Robyn Spoon, a dynamic entrepreneur and founder of the nonprofit Elevate, shares her deeply personal journey that began when her son was unexpectedly diagnosed with rhabdomyosarcoma. This life-altering event propelled her into the world of pediatric cancer advocacy, unveiling the stark realities and urgent need for reform in research funding and treatment. Robin’s story is both a heartfelt reminder of the challenges families face and a call to action for improved awareness and resources in the fight against childhood cancer.
Pediatric cancer remains the leading cause of death by disease in children, yet it is disturbingly underfunded. The obstacles families encounter, from outdated treatments to the lack of comprehensive support, reveal a critical gap in our medical system. Our conversation with Robin underscores the importance of empowering families with the right tools and information, while emphasizing the community’s role in driving systemic change. We share personal experiences, highlighting the need for new perspectives and enhanced advocacy to transform pediatric cancer care.
My hope is to build a coalition with others with a similar desire to change the story for those who follow us…and to do it fast! And while we pursue this mission, we will arm patients and caregivers with the most current information possible so that their families are able to make critical decisions on behalf of their child.
She shares how the loss of her son to pediatric cancer has ignited a movement of others who want to change how pediatric cancer is treated. They're ready for change and they're getting a movement of others involved - this inspiring story will leave you ready to jump in and join the movement!
Check out: https://elevatechildhoodcancer.org/ to get involved!