ALS Caregivers and Beyond

By: Mary Hahn Ward & Lara Garey
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  • Summary

  • Lara Garey & Mary Ward explore their journeys in the context of being an ALS Caregiver and the Beyond. Beyond is the afterlife of ALS when the person they are caring for has passed away. They are authentic in their conversations, strong in advocacy, embrace humor, and share BIG feels as needed. Mary has been caring for her husband, Tom, for many years, the last thirteen have included ALS. Lara cared for her husband, Tom, for six years, from diagnosis to death. Tom died in July 2022. Yes, they each married a man named Tom and they are both military veterans.
    Mary Hahn Ward
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History Social Sciences
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Episodes
  • E16: Intentional Living

    E16: Intentional Living
    Aug 22 2024

    In this unforgettable episode, we broke new ground by podcasting face-to-face—no Zoom required. Lara and her special friend, Grant Trevarthen, visited Tom and me for a few days, and we had the privilege of having Grant as our very first guest.

    Lara and Grant, both living in the ALS Beyond, shared their experiences and insights with deep sincerity. Being in their presence was truly an honor. I've recorded many episodes across this podcast and "This Caregiver Life," but I have to say, this one touched my heart the most. It stands out as my absolute favorite.

    Much love, Lara & Mar

    P.S. We’d love to hear from you! Drop us a note and let us know how you’re doing.

    maryhahnward@gmail.com

    laragarey@yahoo.com

    Check out Lara's blog: Tom's Troops

    Check out Mar's Etsy shop: Cottage at Marehaven

    #ALScaregivers #ALS #ALSwidows #ALSwidowers #ALSsurvivors #Caregivers #Terminaldisease
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    1 hr and 12 mins
  • E15: Stretching Our Wings

    E15: Stretching Our Wings
    Aug 19 2024

    In this episode, we’re embracing new horizons. One of us has been on exciting adventures, exploring both nationally and globally, while the other has been discovering the beauty and challenges of staying local. Join us as we share the lessons we’ve learned and reflect on how our lives are evolving.

    To our beloved ALS Caregiver & Beyond community, thank you for being with us on this journey. Your experiences and stories inspire us every day.

    Much love, Lara & Mar

    P.S. We’d love to hear from you! Drop us a note and let us know how you’re doing.

    maryhahnward@gmail.com

    laragarey@yahoo.com

    Check out Lara's blog: Tom's Troops

    Check out Mar's Etsy shop: Cottage at Marehaven

    #ALScaregivers #ALS #ALSwidows #ALSwidowers #ALSsurvivors #Caregivers #Terminaldisease
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    1 hr and 21 mins
  • E14: Catching Up with Lara & Mar

    E14: Catching Up with Lara & Mar
    Mar 27 2024

    The first quarter of the year is wrapping up and it's been a whirlwind for both of us. We share where we are in this caregiver life (Mar) and where we are in the Beyond (Lara). There has been lots of growth for both of us. As always there isn't a minute of our conversations that we do not enjoy thoroughly. No one sees us more clearly than those who know ALS.

    We talked about Mel Robbin's podcast episode: The #1 Menopause Doctor: How to Lose Belly Fat, Sleep Better, & Stop Suffering Now with Mary Clare Haver, MD

    Have thoughts you'd like to share? Drop us a note:

    maryhahnward@gmail.com

    laragarey@yahoo.com

    Check out Lara's blog: Tom's Troops

    Check out Mar's Etsy shop: Cottage at Marehaven
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    49 mins

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