The Experiential Life App brings together parents and caregivers raising neurodivergent kids through community, webinars, parent support, and downloadable resources, all contained in a convenient app on your favorite device. Webinars with professionals and neurodivergent people

Learn from the experts in real-time, or binge-watch the webinars at a time most convenient for you. Downloadable resources

Need more information that you can reference later? Download resources shared by our experts, or access our library of scripts to help you communicate with your growing list of providers to call. Community

Connect with other parents and caregivers raising neurodivergent kids. Find your community of people who get where you are, support where you are going, celebrate the wins and help you through the hard.

What's included in the Free Version

• Everything FREE to Experiential Life will be FREE to you.
• Live webinars with providers and agency representatives.
• Downloadable resources authored by Experiential Life.
• Quarterly Parent Support Group Meetings

What's included in the Plus Version

• Everything above and...
• Live webinars with neurodivergent adults.
• Downloadable scripts to help you communicate and advocate effectively.
• Monthly "Ask Me Anything" virtual meetings.

Connect to learn more:

IG: @experiential.homeschool.life FB: @experientiallife

Website: https://experiential-life.com/

Link to the episode about the State Developmental Disability Councils: https://spotifyanchor-web.app.link/e/qRWJyZ5QINb

Lifeline Support Program: https://www.lifelinesupport.org/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

What is Dravet Syndrome?

Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700

Enter the Dravet Syndrome Foundation (DSF).

DSF is a nonprofit organization that acts as a convener of the Dravet syndrome community. Since their founding in 2009, they have engaged and educated all of their community stakeholders – patient families, clinicians, researchers, industry partners, and others – to envision and fight for better treatments, and one day a cure for Dravet syndrome.

They believe that efforts to improve the quality of life for those affected by Dravet syndrome must include the patient's voice and experience to help guide outcomes. DSF is proud to be the largest non-governmental funder of Dravet syndrome research, worldwide.

DSF’s steadfast commitment to advancing Dravet syndrome research, as well as our community’s engagement throughout the clinical trial and drug development process, has helped enable three new treatments for the disease, with several additional clinical trials already underway or soon starting. We have made incredible progress, including the approvals by the U.S. Food and Drug Administration (FDA) of Diacomit® (stiripentol) Epidolex® (cannabidiol), and Fintepla® (fenfluramine). Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700.

Connect to learn more:

Website: https://dravetfoundation.org/ Facebook: @DravetSyndromeFoundation

X: @curedravet

IG: @dravetsyndromefoundation

Email: info@dravetfoundation.org

Phone: (203) 392-1955

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠

Mad Hatter Wellness creates a comprehensive sex ed and health curriculum that educates and empowers people with intellectual disabilities and their support systems.

They work with people of all abilities and specialize in health and sex education for people with intellectual and developmental disabilities. They train families, caregivers, educators, and direct support professionals.

For the past 20 years, Katie Thune has worked with children and adults, both with and without disabilities. Her mission is to help people improve their quality of life. In her 12 years working as a school teacher in Saint Paul Public Schools, her most rewarding work was helping a child join Special Olympics or teaching a student mindfulness techniques at home.

Katie founded Mad Hatter Wellness in 2013. She has her Teaching License in Health Education, and Special Education K . 12, as well as her MA in Education: Development Disabilities. She also has her Autism Spectrum Disorder Teaching Certificate.

For more information about Visible National Trust or to see more of Eric's content:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠⁠

‘Arrows’ was founded to empower autistic people's social skills, workplace integration, and personal independence and well-being.

Arrows' first product on the journey towards inclusion is the ‘Skill Coach’, a SaaS software for learning and practicing social skills through realistic conversations with avatars based on Generative AI technology, which is grounded in a leading international program.

The product creates a safe environment for dealing with various complex social situations. A central component of the system is a virtual social coach based on AI, which identifies errors in real-time interactions and provides the user with information and recommendations through visual cues and textual feedback to improve their skills.

Learn more:

Website: https://www.ar-rows.com/

LinkedIn: https://www.linkedin.com/company/arrows-communication-assistive-technology/

For more information about Visible National Trust or to see more of Eric's content:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠⁠

As an Amazon Associate, I earn commissions from qualifying purchases.

The College Autism Network links varied stakeholders engaged in evidence-guided efforts to improve access, experiences, and outcomes for postsecondary students with autism. ADVOCACY: CAN empowers college students with autism by amplifying their voices within the academic community and providing free access to materials to facilitate their successful transition into, through, and out of college.

RESEARCH: They facilitate research that uses qualitative and quantitative methods to examine the systemic, institutional, and personal conditions that shape college access, experiences, and outcomes for students on the autism spectrum. TRAINING: The College Autism Network conducts professional development workshops and distributes training materials to administrators, researchers, students, parents, and instructors

Connect to Learn More:

Website: https://collegeautismnetwork.org/ Facebook: https://www.facebook.com/CollegeAutism

X: @CollegeAutismIG: @collegeautismnetwork

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠

As an Amazon Associate, I earn commissions from qualifying purchases.

Givers hires, supports, and pays family caregivers.

Are you caring for a loved one? See if you qualify to get hired, supported, and paid by Givers in 60 seconds.

State-by-State Compensation Guide:

https://www.joingivers.com/how-to-get-paid-caregiver

Connect to learn more:

Website: https://www.joingivers.com/

Facebook: https://www.facebook.com/joingivers/

X: @joingivers

IG: @joingivers

LinkedIn: https://www.linkedin.com/company/joingivers/

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠⁠

As an Amazon Associate, I earn commissions from qualifying purchases.

Christy Nittrouer is a tenure-track, assistant professor in the management area at the Rawls College of Business at Texas Tech University. She earned her Ph.D. in Industrial/Organizational Psychology from Rice University.

She has raised over $1 million in grant dollars to support her research on allyship and the experiences of minoritized employees in the workplace from funding sources such as the National Science Foundation (NSF) and Texas State agencies.

Her work has received a variety of awards including the 2023 Texas Tech University Alumni Association’s New Faculty Award, the 2020 Ralph Alexander Best Dissertation Award from the Academy of Management, the 2019 Outtz Grant for Student Research in Diversity, and the 2019 Graduate Student Scholarship by the Society of Industrial and Organizational Psychology (SIOP) Foundation, and a 2019 Vaughn Fellowship awarded annually by Rice University.

She has 28 published peer-reviewed papers and book chapters (at outlets including the Proceedings of the National Academy of Sciences (PNAS), Personnel Psychology, Journal of Vocational Behavior, Journal of Business and Psychology, Journal of Organizational Behavior, and Harvard Business Review).

She has given over 60 presentations on the impact of diversity in the workplace, with a special focus on selection. Her work has been featured in The Atlantic, National Public Radio (NPR), The New York Times, ABC News, and the Houston Chronicle.

She was nominated for the 2023 Rawls Excellence in Undergraduate Teaching award and received Rice University’s 2020 graduate teaching award for her outstanding work teaching undergraduates. She has consulted for companies and served on panels for NASA, as well as LyondellBasell (global legal team), Exxon Mobil (affinity group), Baylor College of Medicine (medical students), Proctor & Gamble (global talent assessment team), and non-profits (selection).

Connect with Christy:

https://www.linkedin.com/in/christy-nittrouer/

Email: cnittrou@ttu.edu

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠⁠⁠

As an Amazon Associate, I earn commissions from qualifying purchases.

The Autistic People of Color Fund - At the intersections of disability justice, neurodiversity, and racial justice.

The Fund practices redistributive justice and mutual aid by returning and sharing money directly to and with autistic people of color. They provide microgrants to Black, Brown, Native, Asian, and mixed-race people in the autistic community for survival, organizing, leisure, and pleasure.

They are committed to the principles of Disability Justice, including leadership by those most impacted, intersectionality, anti-capitalist politics, cross-movement solidarity, interdependence, collective access, and collective liberation. Their work is grounded in the commitment to ending extractive economies and building and sustaining generative economies.

Connect to learn more:

Website: https://autismandrace.com/

Email: communityfund@autismandrace.com X: #autisticpoc

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠

As an Amazon Associate, I earn commissions from qualifying purchases.