The Experiential Life App brings together parents and caregivers raising neurodivergent kids through community, webinars, parent support, and downloadable resources, all contained in a convenient app on your favorite device. Webinars with professionals and neurodivergent people

Learn from the experts in real-time, or binge-watch the webinars at a time most convenient for you. Downloadable resources

Need more information that you can reference later? Download resources shared by our experts, or access our library of scripts to help you communicate with your growing list of providers to call. Community

Connect with other parents and caregivers raising neurodivergent kids. Find your community of people who get where you are, support where you are going, celebrate the wins and help you through the hard.

What's included in the Free Version

• Everything FREE to Experiential Life will be FREE to you.
• Live webinars with providers and agency representatives.
• Downloadable resources authored by Experiential Life.
• Quarterly Parent Support Group Meetings

What's included in the Plus Version

• Everything above and...
• Live webinars with neurodivergent adults.
• Downloadable scripts to help you communicate and advocate effectively.
• Monthly "Ask Me Anything" virtual meetings.

Connect to learn more:

IG: @experiential.homeschool.life FB: @experientiallife

Website: https://experiential-life.com/

Link to the episode about the State Developmental Disability Councils: https://spotifyanchor-web.app.link/e/qRWJyZ5QINb

Lifeline Support Program: https://www.lifelinesupport.org/

For additional resources and more information about Visible you can find us here:

Web: ⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠

Podcast (ABC's of Disability Planning) - ⁠⁠⁠https://anchor.fm/abcs-disability-planning⁠⁠⁠

Waypoints - ⁠⁠⁠https://waypoints.substack.com/

What is Dravet Syndrome?

Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700

Enter the Dravet Syndrome Foundation (DSF).

DSF is a nonprofit organization that acts as a convener of the Dravet syndrome community. Since their founding in 2009, they have engaged and educated all of their community stakeholders – patient families, clinicians, researchers, industry partners, and others – to envision and fight for better treatments, and one day a cure for Dravet syndrome.

They believe that efforts to improve the quality of life for those affected by Dravet syndrome must include the patient's voice and experience to help guide outcomes. DSF is proud to be the largest non-governmental funder of Dravet syndrome research, worldwide.

DSF’s steadfast commitment to advancing Dravet syndrome research, as well as our community’s engagement throughout the clinical trial and drug development process, has helped enable three new treatments for the disease, with several additional clinical trials already underway or soon starting. We have made incredible progress, including the approvals by the U.S. Food and Drug Administration (FDA) of Diacomit® (stiripentol) Epidolex® (cannabidiol), and Fintepla® (fenfluramine). Dravet syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime. It has an estimated incidence rate of 1:15,700.

Connect to learn more:

Website: https://dravetfoundation.org/ Facebook: @DravetSyndromeFoundation

X: @curedravet

IG: @dravetsyndromefoundation

Email: info@dravetfoundation.org

Phone: (203) 392-1955

For more information about Eric Jorgensen you can find him here:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠

Mad Hatter Wellness creates a comprehensive sex ed and health curriculum that educates and empowers people with intellectual disabilities and their support systems.

They work with people of all abilities and specialize in health and sex education for people with intellectual and developmental disabilities. They train families, caregivers, educators, and direct support professionals.

For the past 20 years, Katie Thune has worked with children and adults, both with and without disabilities. Her mission is to help people improve their quality of life. In her 12 years working as a school teacher in Saint Paul Public Schools, her most rewarding work was helping a child join Special Olympics or teaching a student mindfulness techniques at home.

Katie founded Mad Hatter Wellness in 2013. She has her Teaching License in Health Education, and Special Education K . 12, as well as her MA in Education: Development Disabilities. She also has her Autism Spectrum Disorder Teaching Certificate.

For more information about Visible National Trust or to see more of Eric's content:

Web: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://visiblenationaltrust.com/⁠⁠⁠⁠⁠⁠

Waypoints: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://waypoints.substack.com/⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠

LinkedIn: ⁠⁠⁠⁠⁠⁠https://www.linkedin.com/in/eric-jorgensen-visible-national-trust/⁠⁠⁠⁠